Smiling from ear to ear yesterday, I held my cooing baby girl on her 136th day of life, now 5+ times her original birth weight. As I watched her snuggle in close, smile, and knead my skin with her perfect little fingers, I felt overwhelmed with joy and gratitude. Her mannerisms are now “newborn-like” and she’s smiling every time she’s awake.
Over the last week, Quin and I have been trying to balance working, spending even more time at the hospital, fighting off colds, creating holiday fun and decorations for Maddie, and operating with guarded optimism that she may actually be coming home in the next 2-3 weeks. I’m still praying that she will be here on Christmas morning and that her first Christmas will be spent in the warmth of our home instead of in the NICU. The actual date is less important, obviously, than the fact that we now can see light at the end of this long, dark tunnel. It’s been an absolutely amazing whirlwind of progress and challenges for her this last month. Like a true champion, she has taken on each new challenge and has made progress. She actually reached the volume of food she needs to take in (60 cc) to come home today. She gets an MRI, more therapy, and 3 immunizations in the coming few days.
We will write more updates as we can, and until then, wanted to at least provide a quick update and some of the latest pictures of our now 6 lb miracle! Thank you all for your continued prayers and well wishes as we embark on the next few (hopefully FINAL) weeks in the hospital.